Medication advice, what does it do from experience?

Im just looking for some reassurance and some advice really if possible, just to see what’s the right thing to do.

I don’t have to preach to the choir here I’m sure, and go over the struggles of ADHD.

Now, I’ve always thought of myself and somebody who’s quite resilient, but really I internalise a lot of problems. I mask a lot of my struggles, and this causes all sorts of anxiety and worries etc. but over the last few years, I’ve really become more aware of my struggles, and I’m really battling hard in life here, and it’s wearing me down.

I have a diagnosis of ADHD combined, inattentive, hyperactive and impulsive. I’m a 29 year old man.

I’m currently awaiting medication, and going through the process of this. But over the years, I’ve really struggled with anxiety, depression, low self esteem, body dysmorphia. I’ve sought help and support from my Drs, therapists, counselling, I’ve tried anti depressants several times to help me. But none of these seem to works.

Now I really am trying to push myself to get better, I’m getting myself back into a routine, exercise, organisation, being outdoors more, doing the things I love doing, but I feel like I can’t do it alone.

In a long way around, I’m asking what does medication do for ADHD? Having spoke to a few people, they say it ‘takes the edge off’, but what does this mean?

I’m not looking at adhd medication as a last role of the dice, putting all my eggs in one basket, but how did it help you? How does it work with the over thinking, the low moods, the lack of dopamine in the brain? How does it make you feel?

20 comments · 75% upvoted · other discussions

comments

SuzLouA

You know how usually, when you’re around neurotypical people, it’s like you’re wading through knee high treacle whilst everyone else is strolling along normally? They seem to find stuff really simple, and to you it’s somewhere between reluctantly doable and shamefully, inexplicably impossible? But then every now and again, you just really get in the zone - a hyperfocus descends, you crack on with something important and productive, and you feel absolutely magic afterwards and so proud of yourself for getting things done. “I wish every day could be like this,” you think ruefully. “I’d be so much better at stuff if I could do this on command.”

For me, at least, that’s what medication is: it’s me, on one of those good days. Except it’s every day. And I can do it on command. The command is still necessary - you won’t just find yourself mysteriously cleaning the bathroom without knowing how it happened, lol, but it’s actually possible to make yourself follow that command. I could still easily spend the day lounging around in bed when I’m medicated, but if I know I need to do laundry or whatever it may be, then I just tell myself, “okay, we’re going to go and do jobs now” and I find myself just… doing it. No scream from my internal monologue about how the boredom, it burns us precious - I just do it. I throw on a podcast, I crack on, and next thing I know, the laundry is done. Or I’ve mowed the lawn. Or I’ve done some work I needed to finish. Or I’ve cleaned the kitchen. Or whatever it may be. And I don’t feel like I’m wrung out and sagging with relief because I managed to sustain the hyperfocus long enough to finish something, because it’s not a hyperfocus. It’s just, like, focus 😂 like the normos have!

Logical-Kick-3901

I know it's not the same for everybody but I'm really hoping for even half of this experience. Late diagnosis at 45. Heavy duty professional job. And I'll be honest: I'm exhausted.

SuzLouA

I was only diagnosed at 39, started medication at 40. It took me a while to come to terms with the wasted time after starting medication - diagnosis felt like a gift, finally a reason to be kind to myself and forgive myself for things that it turned out were out of my control, instead of berating myself constantly. Medication made me angry, though. Like, oh. So that’s why you were all giving me shit - because yeah, this IS easy when you’re not unknowingly dealing with ADHD. I get why you were all so bewildered at my whole deal now. But maybe someone should have noticed this sooner? Maybe instead of just assuming I was lazy, you could have advocated for me, or given me some grace? And anger at just the quirk of genetics that means I have this in the first place - it’s not fair that I’ve basically wasted at least half of my life struggling when the fix, apparently, was fucking piss easy. I know Adderall is illegal here, but I remember being a teenager and hearing about it in American media, so decent ADHD meds have been around for decades now. It’s not fair that the world just isn’t built for brains like ours, and so we are always fighting with one hand tied behind our backs.

I know everyone who is disabled (which feels dramatic to say compared to someone who loses a limb or something, but ADHD is officially a disability) will feel at times that kind of impotent fury at the injustice of it all. And I know “life isn’t fair, suck it up buttercup”. It’s just hard to find out so late in life that things could, should, have been different.

Now I try to focus on the future, though. Hopefully a lot of good years still ahead of me. And I am so very grateful to have found out now, instead of ten years from now, twenty years from now. I can’t change the past, none of us can, but everyone can change their future and that’s the plan.

tomomalono [OP]

You’re doing well mate. It is very tiring. Keep going. I’m hoping for some relief soon.

Logical-Kick-3901

Thanks. It has been an odd few days since the diagnosis. I work with ADHD and ASD expert reports (and other mental health reports and profiles) day in, day out. But the process revealed areas of impact I hadn't ever really considered but were 100% relevant. Yes, I'm doing what I do for a living, now. But I guess I'm the infamous 'what if?' era. Some of that is interesting. Some of it is depressing. Some of it is hitting the emotional dysregulation button HARD. Anyway, I'm sure I'm voicing something that is trite to everybody here!

tomomalono [OP]

I work in SEN, so I read reports and advice and see the struggles too, that’s what really promoted me to look into it more, I read and see a lot of similarities.

I cried for a while after my diagnosis, the relief, the understanding, the confirmation. It was the questioned, answers.

tomomalono [OP]

Wow, thank you so much for your reply. I really appreciate it. I know I can’t count on this as the solution or the answer, necessarily, but that’s how I feel I want to be, and with the best will in the world, I just can’t do that on my own.

Can I ask how long you’ve been on it? And what medication it is?

SuzLouA

It’s not always right for everyone, but for me, it’s been honestly life changing. I’m so grateful to have finally been diagnosed and to live in a time and place where this medication is available. I’m on Elvanse (lisdexamfetamin, but for now it’s under patent so all lisdex is Elvanse, there’s no generic), and have been on a working dose for about six months, with three months of titration before that (started at 20mg, started to feel a bit of something at 40, 50 worked amazingly but wore off by early evening, and 60mg is the same but takes me all the way to bedtime, so that’s my dosage).

tomomalono [OP]

Thank you so much for sharing.

It’s felt like such a relief getting diagnosed, it’s a lot of questions been answered. Thank you so much again for your answers

salty_sherbert_

Im 31(F) and will have been on meds for a year next month (can't quite believe that tbh!)

Currently take 70mg Elvanse and 10mg Amfexa booster at lunchtime.

For me the main substantial changes have been:

Anxiety has pretty much gone away, and even if there are little things where your brain tells you not to say or do something so simple purely out of anxiety I can push past it. So the constant second guessing and negative voise in my head is gone.

A lot more confident and self assured. Better at setting boundaries and sticking to them and ive learnt a lot about the person I am and the kids of people I want to be around. More confident and direct at work as well. Tbh id say my imposter syndrome has reduced a lot as well and I actually have more belief in my abilities.

The need for people pleasing is way down as well, and so similar to above I no longer push my feelings and thoughts aside trying to please others. Its rather freeing.

Its not perfect every day, and it still takes a lot of work but it has been life changing at the same time. Sometimes the meds work better than others, but healthy lifestyle / outside stressors can impact it so ive had bad periods but its still miles better than before

tomomalono [OP]

Thank you for sharing your experience, I really appreciate it.

I know it’s not for everyone, but I’m hoping for what you’ve described. It just seems like such a struggle on my own.

How long did you have to wait for the meditation if you don’t mind me asking?

salty_sherbert_

Depends how you were diagnosed i suppose.

I initially went private and then transferred within the company to Right To Choose but I had my assessment and diagnosis on one day and then probably started medication around a week and a half - 2 weeks later i think

18-SpicyNuggies

People have different experiences from medication, and some just can't get on with it at all. For me, I have little to no anxiety now, sleep better, far more energy (used to crash around 2-3pm daily, this never happens now). My emotions are far more consistent and I'm much less sensitive. I no longer binge eat, and I feel like I can somewhat control the thoughts in my head, rather than just being an orchestra of chaos up there. I'm still trying to navigate my productivity/routine though, but I know I need to start being more conscious of this too. I still actively avoid chores, but actually, when I get started, I don't feel completely debilitated by them like I used to. So I need to get into better habits.

tomomalono [OP]

Thank you so much for your honest reply, I really appreciate it.

Do you mind me asking what you’re on, how long you’ve been on it?

18-SpicyNuggies

Not at all, ask anything you like, I'm an open book!

I tried Vyvanse in January but it didn't suit me at all. Started on Concerta XL in March, titrated up to 72mg until June but had a break due to having surgery. I tried going straight back onto 72mg but my body was not okay with that... 🙃 Currently on 36mg, increasing next week. What I will say, is manage your expectations with the meds, my clinician kept telling me "the meds aren't magic pills and results aren't black and white" - however, I still felt super disappointed that I didn't suddenly have an immaculate house or 24/7 motivation. Honestly, I didn't even acknowledge the benefits I was having because I guess we all have good and bad days, but after talking it out with my clinician and looking back I can absolutely appreciate the consistency now. In my head, I expected this light bulb moment as soon as the meds hit my system, which wasn't my experience at all. It was more like a light bulb moment when I realised I hadn't been anxious for months, hadn't burnt out, hadn't had to self medicate with caffeine constantly just to get through the days.

tomomalono [OP]

Thank you so much, I don’t know what different types there are, and I suppose it’s understanding what there is, but it’s not a one size fits all is it.

That’s a really good insight, I suppose after struggling for so long, it won’t be a lightbulb moment, it’s about that awareness of a change.

Thanks again for being so open and honest

18-SpicyNuggies

No problem, the main ones you'll hear about in the UK is Concerta & Elvanse, both of which are stimulants. They may want you to go for a couple of health checks if there's anything in yours or your family history relating to heart conditions just to make sure they're a safe option for you. There are also non-stimulant medications, but not something I've explored. Otherwise, it's worth looking into vitamins and minerals, my friend (diagnosed, not medicated) swears by lions mane, zinc and iron supplements (washed down with a matcha). Might be worth looking into whilst you're waiting meds. I personally find magnesium, cod liver oil and a high protein diet super beneficial for cognitive function. But again, not a one size fits all thing. Best of luck! The wait between diagnosis and meds can be rough so hang on in there!

brianboru11

I find help with focus, overcoming inertia. In still titration but I think I’ve about hit the limit at 54mg methylphenidate - I don’t like the dry mouth.

It’s no silver bullet- if I haven’t slept well, or I’ve drunk alcohol the day before or generally not looked after myself then I find the effects much lesser.

But when I have given myself a fighting chance then they really do help. The treacleyness of life can be overcome even if it’s still there.

In combination with good habits it’s game changing.

Can I build new habits… not sure yet.

Will it turn absolutely everything around, not in its own I suspect.

AutoModerator

It looks like this post might be about medication.

Please remember that whilst personal experiences and advice can be valuable, Reddit is not a replacement for your GP or psychiatrist, and taking advice from anyone about your particular situation other than your trained healthcare professional is potentially unsafe.

I am a bot, and this action was performed automatically. Please contact the moderators of this subreddit if you have any questions or concerns.

worldworn

I feel like I can't write anything that will give you anything approaching the information that searching "my experience" on this sub will.

There are loads of posts that detail individuals experiences as they happen at different stages of taking them.

In a nutshell: focus, reduced anxiety, more social, better sleep, greater interest in hobbies.

But people will have different experiences.