CPTSD is not a medical diagnosis, and you do not need a Doctor, Psychiatrist, or Psychologist to diagnose you with it - don't let anyone gatekeep you away from it.

This post is inspired by a recent discussion in this post, on whether CPTSD is a medical diagnosis.

Mental disorder is badly misunderstood by the general population, and even some members of this community, to the point of giving harmful advice and gatekeeping. You must understand the mental disorders are not injuries or diseases, with well-defined causational physiological markers. No one can look into your head to see if you have CPTSD, or ADHD, or NPD, like they can look at your leg to judge if it is broken. It isn't as simple as someone having brain damage, or being born different.

Mental disorders are just labels for significant disturbances or dysfunctions in cognition, emotional regulation, or behaviour. They are not defined by possible causes, pathologies, etc, etc. You can have none of obvious causes of a mental disorder, but still have it. If the label fits, then there is no harm in labelling yourself with that label, and seeking help in that vein. It is worth considering that dysfunction is a relative term. What may not seem dysfunctional to someone else may be intolerable to you, and vice versa. Again, if you feel that your quality of life is being significantly impacted, then it is.

To give some examples, there is no confirmed mechanism for ADHD, only correlations related to brain structure, etc. Let me be clear here: there are people who have ADHD, but do not have any of the known correlations, and cannot be treated with any known medications. This is true FOR ALL MENTAL DISORDERS. Let me repeat, the link between physiological markers (brain structure, etc), is not a perfect (or even good in many cases) indicator for subjective symptoms.

This is true, and well studied for many physical disorders and injuries too. For example, sciatica, which is nerve pain down the legs, is a common symptom of disk herniation - but levels of sciatica pain are not well correlated with disk herniation severity, or stage of healing. Pain from injury, in general, is not well correlated with physiological markers of healing. That isn't to say that pain doesn't go down with healing, but that the healing itself has not been shown to be responsible for reduction in pain. You may find that difficult to believe, but that is the science. This is why all scientifically-backed rehab protocols focus on improving subjective symptoms (pain reduction, confidence), and function (ability to walk, etc), rather than focusing on repairing musculoskeletal damage in most cases. Rehab for almost all lower body injuries is the broadly same, regardless of cause, be it blunt-force trauma, tendonitis, nerve pinching - because the injury itself doesn't really matter.

Looking at trauma as a brain injury is a reasonable perspective, but you MUST understand that it is a simplification.

That is why CPTSD is defined as a developmental disorder, not a brain-damage related trauma. This is because CPTSD is caused by a convergence of several factors: lack of mental/social/emotional development due to hostile environment, coping mechanisms developed for hostile environment are dysfunctional in adult world, etc, etc.

CPTSD is actually sort of a misnomer, and some experts in the field would like the name to be changed to better reflect that fact that it is significantly deeper and more varied than PTSD.

In conclusion, do not get hung up in medical diagnosis or causes. The truth is, it isn't important. You do not need a doctor in order to heal. You need to find what works best for you, and that takes learning from a variety of sources, and figuring out what fits you best. Only you know you, so if someone tells you you can't have CPTSD for xyz, you can listen to them if you wish, but feel free to tell them to shove it.

14 comments · 38% upvoted · other discussions

comments

throwaway329394

The reason it's called CPTSD is it has the same symptoms of PTSD plus 3 additional symptoms, with the exception that the PTSD symptoms are typically more "severe and persistent." But I think the name CPTSD should be changed to something else to better indicate it's severity. Having even worse and longer lasting PTSD symptoms is bad enough, but with the 3 extra symptoms on top of that, it's fucking brutal. It's more distinct from PTSD than the name suggests.

ElishaAlison

Actually, I want to riff off your comment a bit, I hope that's okay.

I would really love to see seperate disorders for people with:

PTSD from war

PTSD from life threatening events like car crashes and medical issues

PTSD from adult on adult violence

PTSD from sexual violence

CPTSD from child abuse

CPTSD from spouse on spouse abuse

CPTSD from bullying

CPTSD from long term medical problems

Among others. To clarify, I'm not saying all of these should be called PTSD or CPTSD. I'm saying they should each be categorized seperately.

Am I the only person this makes sense to? Like, a provider could look at my diagnosis and immediately have an idea of the root causes of my post traumatic stress this way.

It just doesn't make sense that they're all under the same umbrella. PTSD from a medical problem is going to look very different from PTSD from a sexual assault. And CPTSD from marriage violence is going to present differently from CPTSD from young childhood, right?

Like they each should have their own designations. It's kind of wild and unfortunate that they don't.

throwaway329394

It would be a long, long list! CPTSD also occurs in genocide victims, torture victims, organized violence, or even being a witness to it. Also I think of people from alcoholic families that go through advanced stages of alcoholism and watching the members slowly die in such a brutal way. I don't think they generally look at causes with a lot of other conditions but with PTSD/CPTSD I agree it's important how it happened.

ElishaAlison

It would! But I think it's important, even if it would take time.

Like, for example, it would be nice if I could walk into, say, a new psychiatrist or therapist office, and tell them my diagnosis, without having to give any further details, at least not until I was ready.

throwaway329394

Yes! That's really important I believe not have to be asked what caused your PTSD/CPTSD. That can be dangerous. It can put our safety at risk. When I was asked in order to get services it floored me afterwards.

ElishaAlison

Especially for those of us who struggle with even verbalizing it. It would be such a blessing to only have to tell the story once. Get the diagnosis, and then wait until you're ready to talk about it.

throwaway329394

And definitely have special care and precautions set up to protect us for the initial time we tell it. Nothing limiting or constrictive, just a lot of care and attention. For example only having someone qualified working with CPTSD patients ask the question or a practitioner we trust.

CoogerMellencamp

Sounds right.... my therapist threw out the CPTSD concept that I hadn't previously considered. It seemed to fit. My doctor hinted that he didn't feel that depression was my main issue but didn't share what he thought it might be. Don't really care. It's my shit to deal with. The medications thing is for me to figure out and get approval from the "experts" because they don't really have a clue.

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SnowAdorable6466

Thank you. I needed to hear this today. Been a year and some that I’ve strongly suspected I have it, but a friend told me it is very tricky to get diagnosed with it (not even sure I want to).

A while back I decided to go with “just assume you have it and treat for it anyway even if you think you might not”. Once I started down that road, and the treatments started to help, it’s only helped me reinforce that I probably do have it. And that is enough for me.

Zephrok [OP]

I think this is precisely the right mindset, in my opinion. I, personally, have been diagnosed with ADHD after being told by a GP that he doubted I had it.

This led me to reading about CPTSD, because CPTSD and ADHD are strongly linked. I read a summary of CPTSD symptoms, and felt understood like NEVER BEFORE. My life was literally writ on the page. I have not been formally diagnosed, but I don't need to because nothing has ever fit me as well as CPTSD has.

And I have grown so much since learning about it, and learning that my deficiences are not a result of personal failing but of complex, systematic abuse.

I hope things are going OKish for you!

SnowAdorable6466

Reading the Body Keeps Score was monumental for me. It had moments that made me cry because I identified so strongly with some of the victims’ experiences. I’m not even much of a crier but it happened involuntarily. A lot of other parts felt like lightbulb discoveries and eureka moments. I feel indebted to that book. I’m not fully healed far from it, I feel like my journey’s just begun, but I feel confident that I’m on the right track. Best of luck and healing to you too.

Zephrok [OP]

That's awesome! I found Pete Walkers Complex PTSD: From Surviving to Thriving to be similarily affecting. I didn't cry, but I did feel a full-body sort of numbness that I've never felt before.

And thanks! I don't think the journey ever ends, really, but eaxh step get's a little easier 💜

SnowAdorable6466

I’ll check that one out. Thanks!