14 Year Old Inventor of Pancreatic Cancer Test Explains Why Science Journal Paywalls Have to Go

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DevinTheGrand

I agree with this boy who is being used as a puppet by some professor.

colluphid42

This is probably true. I have a biotech degree and this kid seems (from what I've heard and read) to have only a basic grasp of the science he's talking about. He's smart, don't get me wrong, but he was definitely guided through the experimental protocols by real researchers in that lab.

The test from his project isn't even new science. Similar procedures have been investigated for other cancers, but it's not easy to make something involving carbon nanotubes into a viable product. It's link bait. But it's link bait that's sending the kid to college. So good for him, I suppose. I hope he hasn't let this stuff go to his head, because he's going to have professors that know the situation was kind of a publicity stunt.

RounderKatt

I wish more people "got" this. 14 year old don't do groundbreaking research on their own, they are invariably a puppet of a professor behind them.

Neko-sama

You still have to give him some credit though. He's doing way more than most of his other peers his age and it seems like he was driven enough in the first place to do the work.

RounderKatt

Hes absolutely smarter/more driven than most 14 year olds. But he didnt go google a bunch of studies and develop a new test in his garage.

Every couple years some new kid gets held up by a professor who wants to trade co-credit for flashy news stories about the miracle kid. Id say it should be banned but I guess it does at least give these kids a chance to see some real science being done.

Youll notice they rarely go on to get published by themselves later though...

DevinTheGrand

The only kid I've ever seen get in the news for doing their own science was that crazy boy scout who built a breeder reactor. I don't think he's doing well now though.

seattlechunny

Not entirely true. I met this kid, as well as a kid who built fusion in his own backyard. Of course, with help, but they were definitely some of the most motivated kids I've seen out there, and I hugely respect all of them!

dancethehora

I remember that. Whatever happened to him?

seattlechunny

I went to a Tedx talk in Redmond where he spoke on how he did it, and he's doing very well! I heard that he was helping develop this technique for looking through trucks at border crossings with minor radiation, and doing lots of other research.

From what I know, he had a lot of help from his parents, and from the local university, but other than that he figured out a lot on his own. A really fascinating guy and a great kid to hang out around :D

oh yeah, he's Taylor Wilson in case if you were wondering.

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grendel-khan

The only kid I've ever seen get in the news for doing their own science

It's more engineering than science, but this guy MacGyver'd a working windmill out of a bicycle dynamo and some scrap pretty much entirely on his own. (He saw a picture of a windmill on the cover of a textbook; that was about it.) The book is a pretty good read.

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BukkRogerrs

Yes, but the entire story fed to us is false, or at the very least misleading and inaccurate. These wunderkind stories are handed to us via news outlets with appealing sounding tidbits and details, they are a dime a dozen, and they're designed to advance motives much less virtuous than the fictitious themes the writers play upon. This kid is like dozens of others over the years who might be a little more advanced than his peers, who is instead heralded as the second coming of Einstein, with unrivaled promise and prestige, but with a "look, you can do it too if you just learn how to focus your energies!!!" charm. Nothing new. We'll see more. And we'll see less and less of this kid as he's eaten up, like all the rest, or forgotten and spit out into the uncaring cold void of academia.

Moarbrains

You try to puppet a 14 year old if you think it's so easy.

Luftvvaffle

It's stupid easy, unless you're the parents. I used to tutor, and every kid thought I was the coolest person on earth.

EDIT: I accidentally a word :/

whymyty

It is definitely difficult to do volunteer research at a big name university as a high school students, proffesors don't want a mere high school student to ruin their work or simply waste their equipment. The people I met at ISEF were very intelligent and ambitious.

Luftvvaffle

As someone here has already mentioned, I suspect the professor has more ties to the child than we're being made aware of. This is definitely a scenario he didn't just wander into, particularly if he didn't know what a pancreas was a handful of months ago. Also you bring up a good point as I doubt he was the most capable or driven person this professor could find. It would not surprise me if he was just set up to do what's essentially busy work, record a color change, and slap his name beneath his mentor's.

Good kid though. Given how our nation tends to operate, perhaps this fourteen-year-old will succeed in getting the state of academia some attention where countless other professionals have failed.

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jesus_zombie_attack

Agreed. Just getting my son to talk at 14 was a challenge.

agenthex

That's illegal in most states.

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CommercialPilot

It's funny, when the news reported last year about his "breakthrough invention" he was 15 years old. Now he's 14...did he invent the anti-aging drug?

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Oprah_Nguyenfry

Props to this kid for taking initiative but...

I was 14 and didn’t even know I had a pancreas but I soon educated myself about what it was and started learning about how it was diagnosed

So, not even a year later and now he's an expert on cancer. Ok, cool.

shicken684

Not an expert on cancer. Just found a good, easy way to detect it.

[deleted]

Didn't find a good, easy way to detect it, but presented what was essentially the collective work of the lab he was pseudo-interning in.

BakedGood

Were they already working on this before he contacted them? Do you think he's lying about contacting them with a plan, budget and timeline as he claims?

I understand he didn't single handedly create this, but was it his idea that led to it, or theirs, originally? We're they making carbon-nanotube paper strip cancer detectors before he came along, or did they get some proposal from a precocious 14 year old and say "Hey wait a second...this shit might work..."

[deleted]

Whatever his previous contribution, THIS proposal is good.

In Norway the ministry of health have deemed publicly available information to be so important that they have sponsored full access to all the major international (in English) medical journals for every Norwegian. All you need is a Norwegian IP address.

LincolnAR

Considering the idea had already been published (twice if memory serves) and the lab he interned in was specifically developing methods for detecting pancreatic cancer, the idea was probably well known to Dr. Maitra (JHU) when he was contacted. The big tip-off is that this work has not been published and was supposedly completed (or at least enough of it to present at a competition was) two years ago. To me, that says it is too similar to the previous work to warrant a full publication, but it's the perfect project for a high schooler because they basically knew it would work based on the previous two papers.

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EagleFalconn

I feel even worse for the poor graduate student who probably held his hand the whole time and did 95% of the experiments but hasn't seen a fucking dime after the 14 year old got a $75,000 for experiments he neither conceived nor ran.

DevinTheGrand

Seriously. What is a 14 year old even legally allowed to do in an academic lab? I feel like the universities lawyers would have multiple strokes if they even let the kid touch a bottle of ethidium bromide.

[deleted]

NOT THE ETHIDIUM BROMIDE!

[deleted]

I screamed like a girl the first time I spilled EtBr on my gloves.

koreth

Are you, in fact, a girl? Because if so, that story loses some of its oomph.

[deleted]

I am a steak-eating, scotch-swilling, hairy-chested man.

But intercalating agents be whack, yo!

SmLnine

Why is that? The Wikipedia page doesn't sound very scary.

oaly512

EtBr is a known carcinogen. Notice I said known and not suspected. Very short exposure time can cause major health problems.

SmLnine

Ok I didn't get the joke. I'm more of a "spherical cows in a vacuum" kind of guy.

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steviesteveo12

The Wikipedia page doesn't sound very scary.

Ethidium bromide may be a mutagen [damages DNA], a carcinogen [causes cancer], or a teratogen [causes birth defects]...

That settles it. We'll do shots.

[deleted]

Ok... but only if you go first.

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potatoyogurt

You know, I worked in an academic lab when I was 15 and 16. A graduate student showed us around for a few days, but the rest of the time, we worked entirely on our own, just meeting every couple of weeks with our professor. The media about these things is always blown out of proportion, but it doesn't mean that this kid didn't put in a lot of hard work struggling on his own. The project may even really be his.

[deleted]

I've been working in labs since I was 19. The vast majority of experiments and analyses I get paid to do could be preformed by a trained chimp. I have no trouble believing a 14 year old could have learned how to run his own lab tests. Coming up with them, on the other hand... I'm not so sure about that. At least not the really technical aspects.

potatoyogurt

I'm sure he had a loooooot of guidance from his professor. At the same time, though, I have met some really incredibly smart people through these programs -- I don't even really consider myself in the same league as many of them, and I wouldn't say that I don't have an ego -- and some of them were definitely capable of coming up with useful ideas for a project like this, even if the full experimental design might be a bit too technically complex to be within their grasps.

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potatoyogurt

Why do these threads always have to devolve to shitting on self-motivated kids why try to get involved in science at an early age? Yes, all the press about him is almost certainly an exaggeration, but that doesn't detract from the huge amount of hard work and learning that goes into putting together a project like this.

Also, this looks exactly like something a precocious 14-year-old would write. I have known a number of people who would write (and have written) things like this. The writing is clearly immature -- this is not how professors write.

Spaser

Its pretty obvious the article was written by the kid. I don't think anyone is trying to give the professor credit for the writing up of the article.

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evanoc

I heard an interview with this guy a week or so ago (http://www.cbc.ca/player/Radio/As+It+Happens/Features/ID/2332814943/).

He said they are in the process of getting patents and licensing the test (seven large corporations). Then immediately after he talks about how important open access is... This caught me off guard

Manilow

Almost like he's completely full of shit... shocking.

babaghanoush

Obviously, he doesn't understand how this type of behavior is contradictory. He wants everyone else to disclose and publish their research for free; yet, he wants to be able to commercialize the product (patent it) to be able to potentially stop others from using it. Seems like he and the professors just want to make money just like the other people involved in any industry. No one likes to work for free.

memumimo

Good spot, but I don't think that makes him a hypocrite. I agree the system of encouraging research through patents is broken, but it's possible to support free access to published articles and still allow patenting the products of the research. He's not saying people shouldn't make money off articles, just that government should pay.

superpastaaisle

Yeah, it is unfortunate, but the shocking fact is that journals require money to operate.

I think a lot of laypeople don't realize the kind of manpower required to run journals. Journals aren't just something a scientist posts a manuscript on like it is Wikipedia.

Southpawz

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PloniAlmoni1

Has anyone heard that "This American Life" episode where they researchers about people coming off the street, pestering them with grand ideas, based on half-assed research and misunderstanding of basic concepts?

http://www.thisamericanlife.org/radio-archives/episode/293/a-little-bit-of-knowledge

This one is also very good -

http://www.thisamericanlife.org/radio-archives/episode/450/so-crazy-it-just-might-work

butt-puppet

I don't really get the idea of forcing people to pay to get access to journals, articles, etc. I understand maybe trying to re-coup some of the loss in doing the study, etc. But wouldn't it be in the best interest of furthering research to make it free?

Quinntheeskimo33

I could be wrong but i'm pretty sure the people who do the actual study don't get any money from this, you actually have to pay to submit the articles to many journals. The money goes to the actual journal.

elar

This is correct. The logic in paying to be in a journal is that your work will be read by more since it is a reputable journal. You are paying for the distribution.

[deleted]

Ah, good old music industry practices

h1ppophagist

And for the services the journal offers: editing, review by anonymous referees, etc.

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[deleted]

Well what the fuck is the point of the whole journal system at all then?

Why don't researchers just revolt en masse and develop a legitimate centralized database that serves the function of a journal (publishing) without the overhead?

Journals seem like pointless, antiquated middlemen in the age of video calling and instant free porn.

[deleted]

This is actually very true, especially since the printed journal is definitely going the way of the dinosaur, as more and more people are only interested in the pdf - version anyway. Sometimes it gets downright ridiculous when you have the "June digital issue" available already on May and so forth.

The problem is, you do need a bit of overhead, since publishing isn't just about sending a paper and then the journal just printing it. The journal assigns a couple of referees to each article who read through it, comment on it, propose changes and corrections etc. This is the first peer part of the peer review system.

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Noname_acc

This is a thing that comes up a lot and there are often quite a few opinions thrown around by people who have very little experience with the publication process beyond "I want to read a paper."

What it comes down to is this:

Pay to read vs Pay to publish. Publishing companies must make revenue somewhere and, to my knowledge, these are the two options. In pay to read universities and corporations foot the bulk of the bill and only members of those groups get access. In pay to publish the onus is placed on the group publishing their paper but everyone gets access.

Pay to read helps to eliminate bias, pay to publish only serves to encourage bias. Those research groups out there that are more poorly funded will lack the ability to publish in higher impact journals. The inability to publish more meaningful papers will very likely feedback and result in more difficulties in acquiring funding and exploring less exciting fields of research.

As an added bonus, well funded groups who are able to afford publication fees will then have the opposite sort of bias. Their publications will make higher impact journals, resulting in increased interest and funding which will in turn result in more publications by that group.

Further, it devalues more specialized journals even more as a result of the feedback from above. If all of the interesting research is getting published in higher impact journals it creates a disparity. Who wants to publish in Minutiae of Electrochemical Microscopy B when it costs money to do so, will not serve to advance your ability to do research in the field?

Now, you may say "I understand that, but the general public should still have access" and yes, in the ideal world you would be right, the general public should. But in the real world, you would be wrong. The potential damage that could result in the peer review process that encourages sound scientific research far outweighs the layman's ability to read a research article the impact and implications of which are far and beyond what he could even begin to understand.

-A scientist

Edit, clarity: obviously the current system is not fully meritorious but it is still more so than the alternative.

cdcox

Moreover, the public does for bio-medical papers have access usually. Any paper published after a year funded by NIH research has to be placed online for free. Physics and maths papers are placed on arxiv (as far as I understand).

A big problem as I see it, is that scientists don't have 'proper access' most journals don't allow you to target them with scrapers or any automated paper hunter. This is killing the ability of researchers to mine research data. These journal databases desperately need to loosen their requirements of access to people who have proper access.

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sprinktron

It costs money because the companies that publish the research have to pay their staff to format the articles, index the abstracts, edit the shitty scientific writing, store pdfs online, recruit and keep an editorial staff, etc. Its not the best system, but its not a total scam either.

Steve132

I'm an academic researcher. I recently got a Journal article.

format the articles

I formatted my own articles completely in latex. They formatted nothing. They gave me an outdated latex template that I had to re-write, and then formatted my entire journal article myself.

index the abstracts

The abstracts were entirely indexed automatically using a keyword system for the journals.

edit the shitty scientific writing

No editing was performed.

store pdfs online

This costs between next-to-nothing (fractions of fractions of a cent) and nothing (Open-Access with re-hosting allowed would allow people to rehost it on their own bandwidth or use bittorrent)

recruit and keep an editorial staff

Any review staff was peer-reviewed by various academics from other institutions. They were un-paid. As I said before, no editing was performed. An editorial staff that does nothing should be free.

Its not the best system, but its not a total scam either.

It provides no useful services to academia and drains a great deal of its resources. Thats a scam.

StrangeJesus

As someone who used to be employed by one of those companies as a typesetter, thank you for recognizing this.

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bwahbwahbwahnoise

None of the money is used to re-coup the costs of the study.

Researchers do the research with money they find on their own (their university might finance them, some wealthy people might make donations or the researcher might use his own money, etc.)

Then the researchers need to submit their work to a peer-reviewed journal, who will have other researchers review the research paper.

If the article is published, the original researcher and the reviewers don't get a cent. The journal keeps all the money in their pocket.

infiniteMe

Researchers don't get any money, publishers do. Total BS. Researchers do the work and write it up. Peer reviewers also get nothing. On top of that, a large portion of research funding comes from the federal government.

djrubbie

Sometimes it's not up to the people who did the study. Even if they want to make the paper they produced open access, the journals themselves do charge the authors of the paper for that "right". Apparently that's how journals themselves profit.

IndependentBoof

Most conferences (who publish proceedings) and journals aren't for-profit, they simply charge to break even on the costs associated with publishing.

newmansg

You pay for a publishing company to take the papers written by scientists and often quite unreadable, and send it for copyediting, typesetting, coded for online publication, print file preparation.

It's not forcing, it's a market opportunity that is there for publishing companies because Scientists wanna science (and not publish), and readers want readable science.

butt-puppet

I've never been published myself, but have talked at length with several professors that have. They've never mentioned this, but makes sense. Definitely going to ask them about this.

newmansg

I work for a publishing company (PC), as the guy that does the "dirty work". Personally I don't mind if the publishing industry is rendered obsolete--I'll just find other work since what I do is pretty much managing vendors/authors towards a deadline. However, there will always be the need for changing a manuscript into a readable article according to the style of a journal (or a society's preference) and the actual hosting of the article on an online platform or the printing of the article. What we can wean ourselves off of as a society is the PC since it acts mainly as a middleman with credibility. The PC can be replaced by a society contact who will liaise with typesetters, copyeditors, printers, and perhaps the society has its own server and online platform. Alternatively we can just publish the accepted manuscripts without any further work done. But the weaning will be tough. Scientists wanna science. We can't have them copyediting their own work. BTW many non-native speakers of English need a lot of help too.

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Frenchip

(...) running times at the Olympics plummeted after African countries started participating. I was thinking that if kids around the world could get connected to the internet and journals and each other, that even more creativity would be harnessed to solve the world’s problems.

Is he saying kids are to science what black people are to running?

[deleted]

I don't know. I stopped reading there, because I had no idea what he was trying to say with that. It felt like he was starting an analogy and then immediately forgot about it.

Frenchip

Did nobody else notice that the kid said that? Or did everybody else just think it was a logical way to end an article about pancreatic cancer and open access to online journals?

Was this whole article just a test to see if people would comment on something without reading the whole thing?

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V3R7190

Was wondering the same thing myself. Wtf do Olympic running times have to do with this issue? Am I seriously missing something here?

ThugNuggets

Anyone else only see "Inventor of Pancreatic Cancer"?

Ax_not_Axe

This really is the direction journals need to go. I get so tired of only having access to abstracts when I want a question answered.

newmansg

Hope you enjoy papers that have shit readability then.

[deleted]

Guys, I think it is time for us to set up a crowd sourced Journal. The peer review could be us.

mdnrnr

Because if /r/all has taught us anything, it is that only the best content will be visible.

And before you directly or indirectly start quoting Freakonomics, remember this; taking an average estimation by people versed in the field and applying the estimation is not new or surprising.

[deleted]

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Wiinsomniacs

"So what I am suggesting here is that cells are 99% less cancerous when we flood them with cats."

[deleted]

But the patient's mortality rates shot up to 100%...

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oscar_the_couch

We already have journals run by lay people who have no knowledge of the field they are tasked with peer reviewing. They're called law reviews, and nobody reads them.

fingawkward

That's not true. 1Ls and legal writers abuse them to get lists of cases for moot court and other articles.

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Quantris

I know he talks about this in the article but this is one of the greatest services that (university) libraries provide. And depending on where you are, there may be extensive inter-library loan agreements in place.

For example, I wanted to read an article from an old journal issue that our library didn't have. I was able to fill out a request form (online), and a librarian in an associated library (I don't know where, but presumably in the same province) photocopied the article and I was able to pick it up from on campus a few days later.

Unfortunately I don't think the inter-library stuff is available for non-students (though there may be a similar agreement with the public library; I don't know off hand since I haven't needed it yet). However, even if you're just a member of the public, you can walk into the university library and freely access material that they have. If you have a public library card you can even check stuff out.

Despite his excuses, finding a way to get to a library is really all this kid needed to do. If that is overly difficult in his area, that's what deserves attention and would be easier/quicker to fix than getting rid of paid journals (IMHO).

Abusoru

Exactly. I remember being given a project in high school where for a paper we were writing, we had to consult at least one peer reviewed source that you would likely find in scholarly journal. The teacher didn't tell us anything more than to go to a university library and work from there. I ended up going to one of the state universities. Walked right in to the front desk, asked for help accessing these journals. They had no problem with helping me do this. People act like it's hard, but I'm sure most public universities would have no issue letting you access journals through their libraries. Heck, I'm sure there are some private universities that wouldn't have this issue either.

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Bob_Wiley

I think we would all be better off if peer reviewed sources were free and financially supported by grants and donations.

SilentStream

A lot of it already is supported by grants from the National Science Foundation, National Institutes of Health, etc. NIH actually makes all publications free to the public no later than 12 months after their original publishing date. Check it out:

http://publicaccess.nih.gov/

crooks5001

never mind. I decided not to be lazy.

http://www.ncbi.nlm.nih.gov/ is the link to where you can find the actual publications and search the archives.

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darkplague17

I'm a medical researcher myself but this just isn't realistic.

Scientific journals requiring a lot of money to successfully accept submissions, hire editors and reviewers, and then compile accepted manuscripts and publish in high-quality periodicals. Plus, setting up websites etc. People aren't going to do this for free.

Now, you may say, let's just pay for it with taxes. Sure, why not? But what's your criteria for when something is a public good and requires subsidization? And what else wouldn't meet this criteria as well? I don't think science journals meet the criteria for a public good.

babaghanoush

100% agreed. No one is going to do this work for free. In the end, people want to be compensated for their originality and innovations.

darkplague17

Yeah I think a lot of redditors don't realize this

babaghanoush

Yeah its unfortunate. I would try to explain this to more of the people on this thread, but I would just get down-voted. I mean its cool that a young kid is interested in cancer research but people just don't understand how all this stuff works.

darkplague17

What's hilarious is I guarantee you if these kid and his mentor invent some crazy novel anti-pancreatic cancer treatment, no way do you see a news headline entitled "14 Year Old Inventor of Pancreatic Cancer Treatment Explains Why He Should Get No Reimbursement Whatsoever For His Work"

[deleted]

Misread this as '14 year old inventor of Pancreatic Cancer Explains...'

MdxBhmt

Meanwhile Aaron Swartz was brought to suicide by the same thing.

[deleted]

If these science journals sites or entities receive ANY Federal subsidies to any degree, we the citizenry have paid; therefore, paywalls must come down.

sprinktron

You benefit indirectly from the knowledge gained. That is what tax money pays for. It doesn't mean you are entitled to access the articles for free any more than you are entitled to walk into a grant funded researcher's office and use his or her computer.

Hax0r778

Wait a minute. Some kids get federally subsidized reduced lunch prices at school. WE OWN THOSE KIDS!!!!!

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